COLLECT. Phoebe Crowson (5) from Pilsgate, Stamford, has the rare genitic skin condition Recessive Dystrophic Epidermolosis Bullosa or EB for short. Little Phoebe Crowson's skin is as fragile as a butterfly's wings – and even a HUG from her mum can leave her in agony. See NTI story NTISKIN. The five-year-old is left with painful blisters and her flesh tears whenever she is touched or even changes her clothes. Even going outside in the wind can lead to temporary blindness if she gets dust in her eyes. And at night she has to sleep on a silk pillowcase to stop her skin on her face tearing if she rolls over. She suffers from recessive dystrophic epidermolysis bullosa (EB) which causes the top three layers of her skin to shear off at the slightest bump or graze. Phoebe was born with a mild version of the condition but in the last few months she has been classed as "intermediate" meaning it is much more severe and can cause blisters to appear on her internal tissue.