A desperate mum is trying to raise nearly £120,000 so her sick baby can travel to the USA for an operation after doctors found an incredibly rare tumour – in his HEART.
Little Michael Labuschagne was rushed to hospital seven months ago when he woke up gasping for air after suffering a cardiac arrest.
The now ten-month-old was then put into an induced coma and his parents were told it was likely he would never wake.
Against the odds, Michael, from Bristol, awoke when doctors reduced his sedation – opening his eyes and smiling at his dad, Stuart.
But that happy moment was quickly tempered by the news that there was a high chance the boy had suffered brain damage.
Luckily, a scan revealed that this wasn’t the case.
However, Stuart and mum Emma were then delivered the hammer blow that Michael had an extraordinarily rare heart tumour which would need expensive surgery to fix.
They were told he had a cardiac fibroma attached to the septum within the left chamber of his heart – which only a handful of patients have ever been diagnosed with.
There is no long-term solution offered on the NHS but Michael’s parents discovered a hospital in Boston, USA which can remove the tumour.
They now need to raise a staggering £116,000 so he can be cured – and ideally within six months.
Mum-of-three Emma, 27, said: “At 14 weeks and three days old he went to bed like any other baby. But at 5am he had suffered heart failure.
“Words cannot begin to describe the pain we felt in that moment.
“We watched our baby breathless, gasping for air while his heart stopped and paramedics worked to save his life.
“In that moment I did not think Michael would make it through.
“Yet I am so so blessed to be here telling you that he survived. He survived an out-of-hospital cardiac arrest which only seven per cent patients do.”
Michael was fitted with a pacemaker after waking up from the coma, which unfortunately restricts the tot’s movement.
Currently, he is unable to sit up or support his own head.
Shop worker Emma said: “It does hold him back. It’s as big as the size of the palm of my hand and it has sharp edges.
“Putting that inside a baby is quite uncomfortable for them. But he is amazing, you wouldn’t know looking at him that he is fighting this.
“He’s a lovely little baby – it’s hard to believe he’s going through what he is. He’s a miracle.”
Michael is also having technical problems with his pace maker.
The sensing lead is struggling to read Michael’s heart rate which means it is completely unreliable and potentially will not work.
Emma added: “Every day is an unknown, until we can get his fibroma removed.”
The mum has now set up a GoFundMe page to try and raise money for Michael’s surgery.
She said: “Boston Children’s Hospital, ranked number one paediatric hospital in the world, has quoted us $147,000 which converts to approximately £116,000 for the procedure and we will need to pay for flights and accommodation
“The cardiac surgeons at Boston are the best cardiac surgeons in the world and they have done this operation several times.
“They are confident that they can drastically improve, or even cure, his condition by resecting the tumour.
“They want to operate within six months as his heart will be a good size. The fundraiser is doing really well so far, but it’s still quite early days.”
You can donate here: https://www.gofundme.com/f/ke5dd-michael