Friends of a young father with Motor Neurone Disease are raising money for a last family holiday before his condition deteriorates.
Dad James Evans, 35, was an active parent to son Cam, aged nine, until just a year ago, when he was diagnosed with MND.
It was a blow for the family as the diagnosis came just months after James’ wife Gen, 30, was given the all-clear following a long battle against mouth cancer.
Now, James’ friends are looking to raise £6,000 to enable the family to go to Disney World on what could be their last family holiday while James still can manage.
The IT manager’s colleagues are leading the campaign and have raised more than £4,000 already through an appeal page on the GoFundMe website.
But they are still short, and now the friend who launched the campaign four weeks ago is calling for more help to get them on the plane.
“James was my line manager when I first started at work and he is still in the office with us every day but he has developed a limp and his hands are now shaking,” said David Livesey, 37.
“As his health seems to be declining at a much quicker rate at the moment, the next holiday they go on could be their last as a family.
“With a life-limiting disease looming over James there isn’t much time left for him to enjoy quality time with his family – they have a lifetime of memories to make in just a year or two.
“We still have a way to go but want to say a big thank you for all the amazing donations we’ve received so far. We hope that people will continue to pledge generously and help James, Gen and Cam have the Christmas holiday they deserve,” he added.
Work is already underway to adapt their home in Emerson’s Green in Bristol to include an extension with a downstairs bedroom and wet room, as well as providing wheelchair-friendly access in preparation for the days when Mr Evans will need that kind of help.
Motor Neurone Disease is a life-limiting, progressive neurodegenerative disease which attacks the upper and lower motor neurons, leading to weakness and wasting of muscles, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing.
Kelsea Little, a spokesperson for GoFundMe.com said: “Our team is thinking of James and his family during this incredibly difficult time. We hope the community continues to rally together so they are able to take this wonderful trip together.”