A boy who suffered up to 500 seizures a month has finally realised his dream of going abroad on a beach holiday.
Brave Filip Gorski, six, suffers from a rare form of epilepsy called myoclonic astatic epilepsy which means he can suffer a seizure at any moment.
The youngster even has a bedroom covered in foam to prevent him from hurting himself whenever he is having a fit.
Devoted parents Sam, 35, and Agnieszka, 33, are on alert 24 hours a day and have had to cut down on their working hours in order to care for him.
Filip had always wanted to go to a sunny foreign beach and finally his dream was realised after a wish granting charity intervened to send the family to Zante in Greece.
His mum, Agnieszka, from Bathgate, West Lothian, said: “It really was a dream come true when we heard Filip’s wish was being granted.
“With Filip’s illness and special dietary requirements, it’s hard to find somewhere that can accommodate his needs.
“He is such a brave little boy, he has gone through so much but he never complains – he’s our little hero.”
When he was first diagnosed in 2013, Filip was taken to hospital more than 90 times and suffered more than 500 seizures a month, before doctors finally came up with a way to control his illness.
Filip now has a well-managed programme of medication and sticks to a strict lactose and gluten-free diet which has reduced the average amount of seizures he suffers each month to just 80.
Dad Sam said: “He was only three when he took his first seizure in the car while we were out shopping one day.
“It took the doctors a few months to finally diagnose him, because all his tests kept coming back clear.
“When they did finally discover what was wrong, they said the Sick Kids hospital in Edinburgh only sees around one child a year with this condition.
“We were hoping it would be the type of epilepsy he will eventually grow out of, but we still don’t know at this stage if that will be the case.
“Other children that suffer from the same condition as Filip are chained to their beds, so we are very lucky.
“Seeing Filip so happy and relaxed in the water was so special – he didn’t have to worry about falling over and getting bruises, you could just see he felt free.”
Filip loves going to the seaside in Scotland, but it had always been his dream to go to the beach abroad so he could swim in the sea.
The family recently embarked on their first holiday abroad since Filip’s diagnosis – to Zante in Greece – thanks to the Starlight Children’s Foundation, a wish-granting charity for children with serious and terminal illness.
A spokeswoman for Starlight Children’s Foundation added: “It was incredible to be able to grant Filip’s wish of a lifetime.
“A Starlight wish means so much to an ill child and creates precious memories for the child and their family.”