Real-Fix
  • Home
  • Podcast
  • Videos
  • Relationships
  • Bizarre
  • Crime
  • Health
  • Inspiration
  • Love This
No Result
View All Result
  • Home
  • Podcast
  • Videos
  • Relationships
  • Bizarre
  • Crime
  • Health
  • Inspiration
  • Love This
No Result
View All Result
Real-Fix
No Result
View All Result

The ‘Bubble Boy’ winning hearts with superhero bravery as he battles rare condition with ‘Daddy’s Magic’

RealFix by RealFix
June 4, 2015
in Cute, Health, Most Popular
0

Seth Lane pictured with dinner in his 'bubble' - the germ free hospital room where he is living waiting for a bone marrow transplant. See SWNS story SWBUBBLE; A five-year-old boy who lives in a 'bubble' due to a rare immune disorder has become a viral video hero after his appeal for support was watched by 2.5 MILLION people. Cute Seth Lane was born without an immune system and has lived in a sterile germ-free environment for more than half of his short life. Following an unsuccessful bone marrow transplant his own cells turned on him, and since January he has been forced to live in a single hospital room which he can't leave. The little lad - who is awaiting another transplant - recorded an adorable video asking people to wear his favourite colour yellow on March 27 to show they are thinking of him.

112
SHARES
114
VIEWS
Share on FacebookShare on TwitterWhatsapp

Five-year-old hero Seth Lane gives a Superman salute as he prepares to undergo a life-saving bone marrow transplant – from his DAD.

Five-year-old hero Seth Lane gives a Superman salute as he prepares to undergo a life-saving bone marrow transplant – from his DAD.  See NTI story NTIBUBBLE.  The youngster, who lives in a 'bubble' due to a rare immune disorder, underwent the procedure and bravely said he was getting better thanks to "Daddy’s magic."  Seth was born without an immune system and has lived in a sterile germ-free environment for more than half of his short life.  Following an unsuccessful bone marrow transplant his own cells turned on him, and since January he has been forced to live in a single hospital room which he can't leave.  Despite the disappointment, Seth was scheduled for another bone marrow transplant from his dad Nik (corr).  He captured the hearts of the nation when he recorded an adorable video asking people to wear his favourite colour yellow to give him luck for the procedure on May 1.  His parents Leanne and Nik, from Corby, Northants., were astonished when the video went viral and racked up nearly 2,500,000 views on YouTube in a matter of days.  Hundreds of thousands of strangers worldwide pledged to wear yellow and send photos which will be used to decorate Seth's hospital room to show he's not alone.
Five-year-old hero Seth Lane gives a Superman salute as he prepares to undergo a life-saving bone marrow transplant from his dad

The youngster, who lives in a ‘bubble’ due to a rare immune disorder, underwent the procedure and bravely said he was getting better thanks to “Daddy’s magic.”

Seth was born without an immune system and has lived in a sterile germ-free environment for more than half of his short life.

Following an unsuccessful bone marrow transplant his own cells turned on him, and since January he has been forced to live in a single hospital room which he can’t leave.

Despite the disappointment, Seth was scheduled for another bone marrow transplant from his dad Nik.

He captured the hearts of the nation when he recorded an adorable video asking people to wear his favourite colour yellow to give him luck for the procedure in  May this year.

His parents Leanne and Nik, from Corby, Northants., were astonished when the video went viral and racked up nearly 2,500,000 views on YouTube in a matter of days.

Hundreds of thousands of strangers worldwide pledged to wear yellow and send photos which will be used to decorate Seth’s hospital room to show he’s not alone.

Moments before the procedure, Seth said a ‘thank you’ to his army of supporters by posing for a picture on his hospital bed wearing a superhero eye mask and cape.

Leanne, a full-time mum-of-two, said: “We never meant to start any sort of campaign, and only expected friends and family to join in.

“It was overwhelming the way it took off.

Seth Lane pictured with his mother Leanne in his 'bubble' - the germ free hospital room where he is living waiting for a bone marrow transplant.   Five-year-old hero Seth Lane gives a Superman salute as he prepares to undergo a life-saving bone marrow transplant – from his DAD.  See NTI story NTIBUBBLE.  The youngster, who lives in a 'bubble' due to a rare immune disorder, underwent the procedure and bravely said he was getting better thanks to "Daddy’s magic."  Seth was born without an immune system and has lived in a sterile germ-free environment for more than half of his short life.  Following an unsuccessful bone marrow transplant his own cells turned on him, and since January he has been forced to live in a single hospital room which he can't leave.  Despite the disappointment, Seth was scheduled for another bone marrow transplant from his dad Nik (corr).  He captured the hearts of the nation when he recorded an adorable video asking people to wear his favourite colour yellow to give him luck for the procedure on May 1.  His parents Leanne and Nik, from Corby, Northants., were astonished when the video went viral and racked up nearly 2,500,000 views on YouTube in a matter of days.  Hundreds of thousands of strangers worldwide pledged to wear yellow and send photos which will be used to decorate Seth's hospital room to show he's not alone.
Seth with his proud mum Leanne in his ‘bubble’ – the germ free hospital room where he is living while he waits for a bone marrow transplant

“I don’t think there is a single country in the world that hasn’t got someone who has got involved.

“Seth had the transplant on May 1 and before it started he sat up in bed and wanted to put on his superhero mask and cape and made the Superman sign with his hand.

“We are incredibly proud of him.

“He knew the transplant would make him feel worse before he felt better but he just said to us ‘it’s okay, Daddy’s magic is still finding its home, I’ll feel better soon.’

“We still have potentially very rough times ahead. Nothing has changed in terms of risks and expectations, but he is not critically ill which is what I had prepared myself for.

“Seth still has no working immune system. The cells are in but they are not working yet.

“We still need to take it day by day. We do not know what is causing his high temperatures and we do not know how his kidneys are going to cope with the ongoing medication.

“We also do not know how Seth’s body will react to the stem cells, or how the new cells with react to Seth.”

Little Seth was admitted to hospital aged six months with an extreme chest infection and his parents were told he had severe combined immunodeficiency.

Known as ‘bubble boy disease’ it is caused by a mutated gene and means the body’s antibodies can’t respond to infections, leaving sufferers extremely vulnerable to germs.

The brave tot was transferred to Great Ormond Street Hospital where he had a bone marrow transplant from donor umbilical cord cells.

But he was kept in a ‘bubble’ – unable to interact with children, go to nursery or play outside in parks – for two years while his body got stronger.

Leanne, who has a five-month-old son Hugo with husband Nik, 31, added: “He had no contact with other children until he was two-and-a-half.

Seth Lane pictured in his 'bubble' - the germ free hospital room where he is living waiting for a bone marrow transplant.  Five-year-old hero Seth Lane gives a Superman salute as he prepares to undergo a life-saving bone marrow transplant – from his DAD.  See NTI story NTIBUBBLE.  The youngster, who lives in a 'bubble' due to a rare immune disorder, underwent the procedure and bravely said he was getting better thanks to "Daddy’s magic."  Seth was born without an immune system and has lived in a sterile germ-free environment for more than half of his short life.  Following an unsuccessful bone marrow transplant his own cells turned on him, and since January he has been forced to live in a single hospital room which he can't leave.  Despite the disappointment, Seth was scheduled for another bone marrow transplant from his dad Nik (corr).  He captured the hearts of the nation when he recorded an adorable video asking people to wear his favourite colour yellow to give him luck for the procedure on May 1.  His parents Leanne and Nik, from Corby, Northants., were astonished when the video went viral and racked up nearly 2,500,000 views on YouTube in a matter of days.  Hundreds of thousands of strangers worldwide pledged to wear yellow and send photos which will be used to decorate Seth's hospital room to show he's not alone.
Seth has a long road ahead but his bravery has attracted millions of devoted fans

“We would go out in the pram and I would have to put the rain cover over him with a little fan inside – people probably thought I was mad.”

But after just a couple of years of ‘normality’ – after Seth had started school and made his first best friends – his body turned on him in October.

When he had his transplant as a baby he developed graft versus host disease – where his donated cells saw his own body cells as foreign and attacked them.

Initially is only affected his skin – leaving him with painful red patches – but in October it turned on his own bone marrow, once again wiping out his entire immune system.

Seth returned to his ‘bubble’ – an ultra-hygienic single room at Newcastle’s Great North Children’s Hospital – in a bid to keep him free from potentially lethal infections, in January.

If the latest transplant is deemed a success, Seth is likely to have to stay in hospital for a year before being allowed home.

Previous Post

Our brave son can’t wait to trampoline for the first time after life changing surgery

Next Post

Marilyn started dating her son’s best friend when he was just 16 years old but the couple are defying the critics after a decade together

RealFix

RealFix

Real Fix is a completely free true-life magazine. Check out our Facebook page for more videos and clips, or download our New Real-Fix Podcast for astonishing interviews with some of the real people behind our amazing stories.

Next Post
Marilyn started dating her son’s best friend when he was just 16 years old but the couple are defying the critics after a decade together

Marilyn started dating her son's best friend when he was just 16 years old but the couple are defying the critics after a decade together

You Must See

Doting dog owner praised her pet pooch after its barks saved her life when her flat caught fire

Doting dog owner praised her pet pooch after its barks saved her life when her flat caught fire

January 23, 2023
Mum forced to wrap up in a hat and gloves in her minus eight home after being left without heating for five months

Mum forced to wrap up in a hat and gloves in her minus eight home after being left without heating for five months

January 23, 2023
Toddler has become Britain’s youngest Mensa member aged just three – reading fluently and counting in seven languages

Toddler has become Britain’s youngest Mensa member aged just three – reading fluently and counting in seven languages

January 23, 2023
Chihuahua missing for seven years has been reunited with its owners after police found him while hunting a suspect

Chihuahua missing for seven years has been reunited with its owners after police found him while hunting a suspect

January 23, 2023
Dog went foraging for a stick and came back with a SEX TOY which she refused to put down

Dog went foraging for a stick and came back with a SEX TOY which she refused to put down

January 23, 2023
Dog lover goes above and beyond to save the life of her best friend by flying her poorly chihuahua 7,000 miles to the UK for surgery

Dog lover goes above and beyond to save the life of her best friend by flying her poorly chihuahua 7,000 miles to the UK for surgery

January 20, 2023
  • Home
  • Podcast
  • Videos
  • Relationships
  • Bizarre
  • Crime
  • Health
  • Inspiration
  • Love This

Real Fix is a trading style of South West News Service Limited.
Copyright © 2022 South West News Service Limited.

No Result
View All Result
  • Home
  • Podcast
  • Videos
  • Relationships
  • Bizarre
  • Crime
  • Health
  • Inspiration
  • Love This

Real Fix is a trading style of South West News Service Limited.
Copyright © 2022 South West News Service Limited.

googletag.cmd.push(function() { googletag.display('sticky'); });