A sick toddler who spent the last four months living inside a sterile bubble in hospital is hoping to be home for Christmas – because Santa can’t visit.
Little Jack Fisher has spent the last four months living inside a sterile environment after undergoing a life-saving bone marrow transplant.
Now, the two-and-a-half-year-old lad wants to be out of hospital and at home in the next ten days – so Santa can come down the chimney and visit.
Jack, from Lingfield, Surrey, has been living in Great North Children’s Hospital in Newcastle-upon-Tyne since September when he had underwent the bone marrow transplant.
The lad was just nine months old when he was diagnosed with a rare genetic condition called chronic granulomatous disorder.
So that they can stay closer to him, Jack’s family have temporarily moved up to Newcastle, but they are hopeful that they will be able to take him home soon.
Mum Rachel Fisher said: “The first thing you ask yourself is, is my child going to die?
“When we were told Jack had a life-threatening condition it was so difficult to accept.
“It was incredibly worrying for all the family.
“Before the diagnosis, he’d been a normal little boy.
“We’d taken him camping, in the outdoors, the woods, all the places you take your children.
“We just had no idea that he had CGD until he became unwell.”
Jack was first hospitalised in Brighton after contracting a chest infection and underwent numerous unsuccessful treatments until it was found he had CGD.
A life-threatening illness, Jack can’t fight bacterial or fungal infections effectively because of a faulty bone marrow gene, which means that some of their white blood cells don’t work properly.
Rachel added: “We were told his best chance was to have a bone marrow transplant, there was no question we would not go ahead.
“We want Jack to have as normal a life as possible and without a transplant, he’d have to live in a bubble for the rest of his life.
“It’s had a massive impact on all of us. We’re a long way from home, our family, friends and support network.
“That’s been difficult, along with the constant stress.”
“I’m really happy we came to Newcastle.
“We’ve got a four-year old little boy as well so we are all here together as we didn’t want to be split up from each other.
“Jack’s making good progress and even though we’ve had a difficult couple of weeks, we’re hopeful we’ll all be back home for Christmas, all being well.”
The Children’s Bone Marrow Transplant Unit at Great North Children’s Hospital is one of only two specialist centres in the UK.