NTI_BRONTE_DOYNE_35

Lorraine Doyne, from Nottingham, whose daughter Bronte passed away aged 19 after doctors failed to diagnose her with a rare cancer. June 16 2015. Heartbroken mum Lorraine Doyne has released messages written by her teenage daughter Bronte in which she begged doctors to take her seriously in the months before she died from a rare cancer. See NTI story NTICANCER. Lorraine, has worked alongside Nottingham University Hospitals NHS Trust (NUH) to improve how medics deal with patients after her family was told not to research her rare liver cancer online. Bronte died on March 23, 2013, aged 19 – just 16 months after she first complained of severe stomach pains. In text messages, tweets and personal diary entries, the New College Nottingham student expressed her worries that medics were not acting as her health deteriorated. She said doctors told her they would be seeing her for the next 20 years. But in a cry for help in July 2012, Bronte tweeted: "My body does not feel very good #helpme." The NUH has now admitted: "We did not listen with sufficient attention." Its board has promised to learn from the case of Bronte, of West Bridgford, Nottingham, who was first admitted to hospital in September 2011 with suspected appendicitis, and was told she had fibrolamellar hepatocellular carcinoma – which only 200 people globally a year are diagnosed with – shortly after turning 18. The family found information about the cancer on a website endorsed by the US government and discovered it had a high chance of recurrence but, when they put that to a doctor, they say they were told to "stop Googling".