A woman is forced to live each day as if it’s her last due to a rare condition that means she’s constantly at risk of sudden death.
Kaylee Crank, 25, suffers from Long QT syndrome which has no symptoms, but means her heart could stop at any time.
Every day is dangerous for the young woman, who is otherwise perfectly fit and healthy.
Kaylee said: “I have occasional palpitations, which can be scary but I have learnt to deal with them.
“Sometimes I feel it works in my favour because I live everyday as if it could be my last.
“This is mainly the reason I would like to raise awareness.”
Kaylee, of Hindley Green, Gtr Mancs., was unaware she had the condition until she was routinely screened four years ago while studying Sport and Exercise Science at university.
Only 2,000 in the world are affected by Long QT Syndrome, which causes electrical activity of the heart.
She is now hoping to raise awareness of the Cardiac Risk in the Young (CRY) charity to make others aware of the silent dangers it poses.
“It’s terrifying to think that I may not have been here had CRY not advised me to see a specialist after the screening,” she said.
“At this point it’s the family that suffers and it would be tragic to lose someone so suddenly to a condition that could have been diagnosed and managed.
“Otherwise healthy, young, fit people often presume that everything is fine, and never imagine that they could be suffering from an un-symptomatic heart condition until something terrible like sudden death occurs.”
Kaylee now has to take beta blockers to manage her condition as these slow her heart rate and lower blood pressure.
She’s also has had to change her big life choices including avoiding certain medications, avoiding places with bright lights, loud music and sudden shocks, and generally avoiding anything that will raise my heart rate too much.
Kaylee said: “Vodka Red-Bulls are definitely off the cards for me. Currently living with the condition is manageable, and despite it hanging over me, I try not to let it stop me doing anything I would normally do.
“My family are more affected by this than me really, I have a positive outlook, where my mum would rather me be sat in the house wrapped in cotton wool.”
Kaylee and a group of her friends have planned a bike ride next month to raise money and awareness of the condition.
She added: “I just want to give something back to CRY and raise awareness for other young people so I decided I wanted to do a charity bike ride.
“Nothing too strenuous, seeing as I do have a heart condition, but something that was a bit of a challenge.
“My work colleagues decided to join in to support me and raise even more money for the charity.”